Takeda”s dedication to well being fairness and entry for uncommon illness group

Many different pharmaceutical corporations are specializing in serving to Vietnam forestall and deal with infectious illnesses, so why did Takeda select the harder path of uncommon illnesses, particularly illnesses associated to genetics and haematology?

Takeda's commitment to health equity and access for rare disease community
Than Trong Son, head of Medical Affairs, Takeda Vietnam

Most main pharmaceutical corporations, together with Takeda, are targeted on supporting Vietnam’s Ministry of Well being in stopping, detecting, and addressing the threats of widespread infectious illnesses within the nation.

Our expertise as a frontrunner in haematology means we’re properly ready to fulfill immediately’s wants as we pursue future developments within the care of blood problems.

Inside Uncommon Immunology, we concentrate on driving steady innovation and personalised care by means of our portfolio of plasma merchandise and progressive focused remedies, diagnostics, and different companies for sufferers with uncommon immunological problems similar to hereditary angioedema (HAE).

Are there any variations in supporting uncommon illness remedy in Vietnam in comparison with different international locations the place the group is energetic?

It depends upon the wants of every nation. Takeda continues to boost expectations for the long run, together with earlier analysis, earlier and full safety towards bleeding, and extra personalised affected person care in each nation we offer our companies in. We stay targeted on increasing the usage of our present portfolio to learn extra individuals dwelling with uncommon bleeding problems.

Two blood illnesses – haemophilia and HAE – are additionally uncommon genetic illnesses. How has Takeda helped cut back the burden of those illnesses on the Vietnamese healthcare system?

A profound and impactful undertaking we’re engaged on is the NCGM HAE Functionality Undertaking. Over the previous three years, Takeda Vietnam has launched into a collaborative initiative, in partnership with the Ho Chi Minh Metropolis Affiliation of Bronchial asthma-Allergy-Medical Immunology and the Nationwide Middle for International Well being and Drugs in Japan, making outstanding strides in enhancing the lives of people affected by HAE.

By way of a sequence of academic actions, we’ve empowered healthcare professionals with data, ignited a wave of public consciousness, developed essential tips and academic supplies, and supplied important assist for early analysis. Because of this, 19 HAE sufferers have obtained confirmed diagnoses, marking a major milestone of their journey in the direction of higher well being.

In advancing the remedy of haemophilia, Takeda has organised workshops for healthcare suppliers, coaching programmes for nurses and sufferers on illness administration, and labored very intently with the Vietnam’s Haemophilia Affiliation. In collaboration with specialists from the Nationwide Establishment of Haematology and Blood Transfusion, we’ve additionally prolonged our attain by means of the Haemophilia Middle of Excellence community in numerous provinces, making certain there may be improved entry to haemophilia centres.

Takeda has additionally collaborated on the event of a nationwide guideline for take-home remedy for haemophilia with the native authorities, aiming to boost affected person care and empower people to handle their circumstances successfully.

What success has Takeda gained in stopping and treating these illnesses?

Takeda’s unwavering focus lies in establishing sustainable capability at each essential stage of affected person care. From elevating consciousness and facilitating correct diagnoses to offering ongoing assist, we’re devoted to making sure that sufferers have entry to our superior medicines. Now we have created a sensible framework that guides our efforts to extend sustainable entry to progressive medicines for advanced and uncommon illnesses by means of native partnerships.

To attain this, we’ve applied affordability programmes that break down monetary limitations and improve affected person accessibility. Collaborating intently with policymakers, we try to create an enabling atmosphere that additional improves affected person entry to important remedies. Our power and dedication lie in growing progressive options that empower sufferers to beat affordability challenges and acquire entry to the life-changing medicines they require.

These affordability programmes are tailor-made to every nation to make sure entry for as many sufferers as doable. We consult with them as “Affected person Help Programmes” (PAPs).

Takeda's commitment to health equity and access for rare disease community
Takeda Vietnam helped the Nationwide Youngsters’s Hospital to organise actions in response to Worldwide Uncommon Illness Day 2024

Lately, the Vietnamese healthcare system has made many advances and constructive adjustments within the prevention and remedy of uncommon illnesses. How have these adjustments affected Takeda’s targets and actions?

As challenges nonetheless persist similar to lack of specialized genetic centres, restricted testing capability, delayed diagnoses, and the unavailability of particular remedies within the nation, we stay steadfast in our dedication to drive constructive healthcare outcomes, elevate the capabilities of our healthcare professionals, and form progressive healthcare insurance policies to make sure sustainable entry to progressive, life-transforming remedies for the Vietnamese individuals.

This Uncommon Illness Day 2024, we’re constructing on our dedication to boost consciousness of well being inequities in uncommon illnesses by highlighting particular challenges that sufferers and their households expertise, whereas encouraging the group to take motion to enhance requirements of care.

We wish to make clear the low ranges of illness consciousness that disproportionately impacts the uncommon illness group because of the infrequency of their circumstances, and leads to distinctive and vital well being inequities, together with a probably prolonged diagnostic journey and limitations to accessing scientific care.

We stand with the uncommon illness group as we promote motion at each a world and native degree to cut back the burden of well being inequities and drive significant change so that everybody could in the future obtain optimum care.

Are you able to inform us about Takeda’s latest cooperation initiative to enhance the standard of analysis, remedy, and administration of uncommon illnesses in Vietnam, and related expectations?

Over the previous few years, Vietnam has positioned extra concentrate on uncommon illnesses and enhanced uncommon illness capabilities in analysis, remedy, and administration tips. To advance this progress, the Vietnamese Ministry of Well being has promoted public-private partnerships with numerous stakeholders similar to pharmaceutical corporations.

Since 2018, Takeda Vietnam and the Medical Providers Administration of the Ministry of Well being have joined forces to sort out difficult illnesses by means of a MoU titled “Bettering analysis, remedy, and administration of particular uncommon illnesses in Vietnam” for 2018-2023. This collaborative effort has yielded outstanding progress.

Constructing upon this, throughout a scientific dialogue organised along with Uncommon Illness Day 2024 on February 29, a major agenda was the MoU signed between the Medical Service Administration below the Ministry of Well being and 4 main pharmaceutical companions in Vietnam, together with Takeda.

The first goal of this memorandum is to boost the standard of administration and remedy of uncommon illnesses throughout the nation. Given the federal government’s present exploration of public-private partnerships with numerous stakeholders, this MoU holds nice relevance in advancing capabilities associated to the analysis, remedy, and administration tips for uncommon illnesses.

As a key associate within the MoU, Takeda Vietnam is dedicated to collaborating with the Ministry of Well being and different stakeholders to creating substantial contributions to the progress of uncommon illness administration within the nation.

Takeda's commitment to health equity and access for rare disease community
The MoU signing ceremony between the Medical Service Administration and 4 pharmaceutical corporations on February 29

In 2024 and 2025, what are Takeda’s strategic priorities to additional enhance Vietnam’s healthcare system, particularly in uncommon illness prevention and remedy?

Takeda is dedicated to supporting the uncommon illness group and decreasing the burdens they face, notably by way of well being inequities. We goal to boost consciousness about these inequities and the limitations to analysis and care that the uncommon illness group encounters.

In Vietnam, Takeda is adopting an “Entry-First Mindset” strategy to handle healthcare challenges. We’re targeted on making a healthcare ecosystem that prioritises accessibility, particularly for these affected by uncommon illnesses. Our dedication is unwavering, as we try to assist all sufferers on their difficult journey. Our final goal is to make sure equitable entry for everybody, as we firmly imagine that people with uncommon illnesses and their caregivers deserve not solely solutions but additionally a transparent path in the direction of a greater future.

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